I went back to work today after a (somewhat) relaxing week off and I think I was mostly ok, but now I’m feeling terrible again; I’m rushing to the bathroom, having cramps and pains in my stomach and side, and I’m starting to feel really tired already. On top of that, my prescription isn’t at the pharmacy yet even though the doctors said it went on Monday so now I’m out of mercaptapurine. I know I’ll be ok without it for a couple of days (maybe) but I could really do with not missing too many doses. The hospital also want to do yet another flexi this week but they haven’t told me when yet. I’m not looking forward to it but if it means they can finally do something to stop this flare, then fine. I do not want Christmas to be ruined because of my stupid gut.
Tag: flexi
Flexi is over and done with but they didn’t find anything to warrant them doing anything. I’ve been told to go home and relax, and to call the helpline if things get worse.
I’m doing as I’ve been told and I’m trying to eat as normally as possible but I’m still flaring so that won’t be very easy.
I might take a nap later; the sedative hasn’t quite worn off yet and I’m tired and a little light headed from it still.
Morning of the flexi and I’m still nervous. Nervous and in pain from the “prep”. All I want to do now is sleep but I can’t because I’ve got to leave for the hospital in less than an hour. I also feel a little sick but I don’t think there’s anything left for me to throw up. I can tell this isn’t going to be a good day for me.
Night before the flexi and I’m a little nervous because I don’t want to a repeat of last time and end up in hospital for a week. I’m going to ask for a sedative this time because, although I shouldn’t need it, it was pretty painful last time without it.
Symptoms are slowly getting worse but at least my manager is understanding of my appointment tomorrow and shares my hatred of long tubes with cameras on the end.
I’ve spoken to the nurse and I’ve got to have another flexi on Thursday. I just really hope this doesn’t end with me in hospital again. They said it might be an infection, given the time of year, but they still want to see how my colitis is reacting to the meds, just in case.