I hardly slept last night so I’m feeling pretty awful today. I’ve been dosing on and off all morning but I don’t feel any better for it. I’ve barely eaten anything either because my stomach is hurting. I’m hoping a nice warm shower will make me feel better but first I need to gather some spoons from somewhere to get out of bed.

Despite the mix up with/lack of humira today, I had a good Valentine’s day. My wonderful fiance took me out to TGIFriday’s for dinner and I was able to not only eat all my main meal, but also a strawberry sundae after. Feeling quite full but not bloated. All in all, a good day.

Last update of 2016

TGIFriday’s went well on Thursday. I had a nice gluten free burger and I got a free mocktail. Friday was good too so was today, although I did have a bit of a stomach cramp this afternoon. I am spending New Year with my fiance, sister and her fiance watching Dara O’Briain, eating pizza and drinking iced tea. I hope everyone has a good, safe New Year.

Good week so far

So work wasn’t too bad this week so far; I found that applying heat to my cramping stomach helps it relax and, therefore, stop hurting. My manager, who gets cold very easily, uses adhesive heat pads on her stomach so she gave me one which meant I felt perfectly fine all day yesterday. I’m getting myself some heat pads as they will be great for the winter as well as my stomach cramps.
My upped dose of mercaptapurine seems to be working somewhat, and the colesevelam seems to be doing its job as well. I’m not entirely out of the woods but I do feel a little better in myself. Oh, and I finally got my cholecalciferol which I started yesterday so fingers crossed my hair will stop falling out and I won’t feel as tired anymore.
I’m off work today so I’m spending it with my sister and her fiance and we’re going to go bowling this afternoon. This evening we’re going out for a meal because it’s my mums birthday today. She’s unfortunately working all day but I’ll see her at the meal to give her her present. We’re going to TGIFridays; they’ve got a good gluten free menu and decent portions too. Here’s hoping it all goes well.

Merry Christmas

I’ve been pretty self-destructive today by eating things I shouldn’t have. I’m hurting quite a bit right now so I guess I’m paying for it. Pain killers are next on my list.

I won’t be online for a couple of days but I hope everyone has a spoon-filled Christmas/Winter holiday.

Been a little self destructive today; I’ve eaten things I knew would be a bad idea and am now paying for it. I wish I had better self control. Still, I’ve a week off work now so I’m going to try to stick to my flare foods as much as possible. Wish me luck!

Been feeling pretty crap this week. It’s been just under two weeks since I finished the prednisolone and I knew I’d have a few withdrawal symptoms like maybe a bit of stomach pain, but I’m still feeling like I’m on the verge of a flare up which is only just being kept at bay by the mercaptapurine.
I’ve been going to bed early and practically falling asleep as soon as my head hits the pillow but when it’s time to get up, I feel like I’ve barely slept at all so I think I’m crashing.
I keep getting cramps in my left side which feels like period pain sometimes (even though it’s not because I’m on the Pill).
On top of that, everything I eat makes me bloat, regardless if it gluten free or not.
At least I only have one more day of work this week.
I have a Fifth Edition session on Sunday afternoon which I’m looking forward to but at the same time wish was another day because I just want to be able to sleep all day Sunday.

I tried a Rule of Crumb gluten-free chocolate muffin for lunch and it was great! Very yummy. Problem is my stomach has been hurting on and off all day so, aside from a yogurt, it’s the only thing I’ve eaten. I think the pain is because I’m only taking 5mg of prednisolone now so it may be that I don’t eat much else today.

Last week!

Of being on steroids and I think I’m ok. I did have a bit of stomach pain earlier but that seems to have settled now. The need for the bathroom is a little worse than it has been but nothing dramatic has happened yet. I’m still a little anxious about stopping next week but I think the mercaptopurine should be enough to keep me mostly in remission. I’m seeing my GI this Monday so I’ll be able to express any concerns then as I’ll have a better idea of what it’ll be like without the prednisolone.

I’m trying to eat as normally as I can, sticking to mostly gluten-free and only eating what I can instead of trying to force myself to eat in order to finish a meal/meet calorie goals. So far, I’ve only had two days in the last week where I haven’t reached my calorie goal but also a couple where I’ve gone over so it sort of balances out.

While on the subject of food, I got my Rule of Crumb delivery yesterday and I’ve already tried the breaded chicken. To say it was good would be an understatement; I will definitely be ordering from them again. I haven’t tried the fish, bread or muffins yet but I will, hopefully soon, and report back. Thank you to @glutenfreecuppatea for posting about it and leading me to investigate.

This week has been weird. I’m half way through my sixth week of prednisolone, taking 10mg per day, and I’m getting a dull pain in my left side which I usually associate with a flare up. Only, everything else symptom-wise is fine. The pain isn’t too bad, I’m not needing pain killers, but I am noticing it more.

It doesn’t seem to matter what I eat; I get the pain and a need to go to the bathroom shortly after each meal. I only had soup for lunch but we were a little naughty and had Chinese for dinner, which has only ever made me bloat in the past.

Ah well, hopefully, next week will be better. I go down to 5mg of prednisolone per day on Wednesday but provided the mercaptopurine is doing what it’s meant to, I shouldn’t have any/too many issues. I’ve got a follow-up appointment with my GI at the hospital in a couple of weeks so I can always discuss things with him. I am hoping to have spoken to my GP about my high heart rate by then but we’ll see. I just hope I can get an appointment with her soon.