Quick update

The doctor came to see me this evening because I had trouble breathing again after dinner. She said it could have been brought on by my anxiety that the humira might stop working like the infliximab did. So she said to not think about it and try and relax. It still looks likes I’ll be going home tomorrow but they want to keep an eye on me until then, just in case. I hope everyone is having a relaxed evening.

One more night…

Because of my shortness of breath this morning, the doctors want to keep me in for another night just to make sure it’s nothing serious. They said there’s no clot or signs of infection but they want to be safe because of my heightened risk of infection. The joys of being on immunosuppressive meds.

Feeling better but…

I was short of breath this morning so they did an ECG, chest xray and took blood from both vein and wrist artery – one of the most painful medical things I have ever experienced. They still need to review the xray but my blood oxygen and everything is fine. I think I may have just overdone it this morning because I feel fine now. I just hope this doesn’t mean I’ve got to stay another night.

Managed to do my last three humira shots myself!

Feeling a little proud of myself, right now.

First shot of humira complete!

It wasn’t as scary as I thought it might be. I’m just waiting on the next three then I’ll give it a go myself.

Thank you so much, @natsufatsu and @skykingdomfullofstars. The nurse should be round soon to go over everything and then I’ll hopefully start feeling a bit better. I might be a bit tired but I’ll recover faster once I’m home and sleeping in my own bed. Thank you for the positive vibes, I’m feeling a little bit happier about things now.

News!

I’ve just had the doctor come round and they’ve decided to put me onto humira, starting with four injections today. They’re also going to change the steroids I’m currently on – which I hope is only whilst I’m in here and won’t be yet another eight week course. Provided it all works, I should be home by Wednesday.

Feeling a bit down… sorry

Been in the hospital for almost a week now and, I’ve got to be honest, I don’t feel much better. I’m eating more, at least, but that’s down to the steroids boosting my appetite. Nothing else is working and I’m feeling so tired all the time. All I want right now is to feel better so I can go home and sleep in my own bed. Sorry for the early morning sad feels but I just needed an outlet for how I’m feeling at the moment.

Feeling pretty fragile this evening; they forgot to prescribe me my lunchtime meds so I ended up not taking them (even after I mentioned I needed to take them) and now I feel bloated and uncomfortable. I’ve told the nurse so hopefully they give me something to help, and with a bit of luck, I might get some more sleep tonight too.

So, every day this week the nurses have turned the lights out and pulled the curtains for an hour or so in the afternoon for a “quiet hour” so patients can rest. Usually during this time, I stay on my tablet. Maybe listen to a podcast or two (Welcome to Nightvale being the current favourite). Today, they didn’t do this. And I feel I could have done with an hour or so nap. Ah well, hopefully it means I’ll sleep better tonight.

I got a visit from my aunt early today too, which was nice. Looking forward to seeing my parents this evening, and my fiance said he’d be round tomorrow afternoon. Mostly though, I’m looking forward to going home but I don’t think that’ll be anytime soon.