Tag: colitis

Spoke to the IBD nurse this morning and they want to rule out infection so I need to do some samples. Typical that, now that I need to, my gut is behaving.

In other news, I was thinking about returning to the gym this afternoon. Only for a light bit of cardio to see how my body takes it, but it’d be nice to start again so I can get back into a somewhat normal routine. I’m planning on going to London Comic-Con in May and I want to be as healthy as I can for that.

I’ve called the helpline. I know they won’t really be able to do a lot because I have my appointment with my GI next Monday, but I just feel like I need to talk to a nurse; the last few days haven’t been good.
I have to have a blood test at the hospital too so I’m going to be busy this morning. I’m not planning on doing a lot this afternoon though; I’m not sleeping enough so I might try and have a nap after lunch.

I feel like I’m getting worse. I’m still on the prednisolone (25mg daily) and I’ve got my humira on Monday, but it feels like things aren’t getting any better. I’m trying to be as positive as I can to avoid stress, as that seems to be one of my main triggers, and I’m sticking to the low fibre diet as much as I can, but the last few days have been pretty bad. I’m conflicted about calling the helpline because I’m scared of what they might say. Plus, it seems pointless because I’ve got an appointment with my GI on 13th and the nurse may just say wait until then. I also don’t want them to suggest I come in for a flexi then decide I need to stay in the hospital again. I can’t be dealing with yet another hospital stay! I’m trying not to stress about it but I just feel like nothing is working and that surgery may be my only option now.

Sorry for ranting but I just needed to get this stuff off my chest.

spooniestrong:

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Send a picture (or several!) and your story to SpoonieStrong@gmail.com and I’ll feature it on the Facebook & Tumblr pages. Let’s make autoimmune disease visible!

*love & spoons* 💙

I’m having a chilled day today so I decided to see if the rats like to play in water. Neither seemed too interested but I at least got cuddles with them both. I find playing with them very relaxing; they take my kind off of whatever’s bothering me and give me a moment where I don’t feel like the world is falling apart around me.

Feeling so very tired after the last three days at work but I’m also feeling positive that things are returning to some variation of normal. My symptoms are still present and, although they haven’t improved much since I left the hospital, they haven’t gotten any worse. I feel things are manageable at the moment but I’m keeping a very close eye on what my body is doing and how it’s reaction to food as well as my medications.
I’ve got one more day at work before I get a day off but if it’s anything like today was, I’ll be ok. I’m planning on sleeping most of Sunday so I’m ready for next week.

First full day at work yesterday went really well; I felt fine during the day, didn’t get stressed out and, although I was tired when I got home, I still had enough spoons to make an easy dinner of mini pizzas and cheese hot dog bites for me, my fiance and a friend. We even played D&D fifth edition which was my friends first ever play. It was really fun and I can’t wait for the next session. I’m ready to take on day two.