I’m a little tired today but I’m gyming anyway; I had a Burger King for lunch (probably going to regret eating all that bread later) so I sort of feel obliged to do a little bit more while I’m here.
I’m still in bed, not really wanting to get up, but it looks so nice outside. It’s making me want to go for a walk.
Only three more days until I finish the predinsolone. I’m still not sure how I feel about it; on the plus side, I’ll be off the steroids so no more horrible pred-side effects. On the down side, I don’t want a repeat of what happened last time I came off them and end up in hospital because of a flare-up. I don’t think a relapse is likely as the only symptom I’ve had recently is stomach pain, but I can’t help but think things may get worse once I come off them completely. I’ve got my appointment with my GI on Monday but it’s only a follow-up for the mercaptopurine. I’ll be sure to mention any increase in symptoms as well as my height resting heart rate to him. I don’t think he can do much about my heart rate but ti’s probably still worth mentioning.
I tried a Rule of Crumb gluten-free chocolate muffin for lunch and it was great! Very yummy. Problem is my stomach has been hurting on and off all day so, aside from a yogurt, it’s the only thing I’ve eaten. I think the pain is because I’m only taking 5mg of prednisolone now so it may be that I don’t eat much else today.
Last week!
Of being on steroids and I think I’m ok. I did have a bit of stomach pain earlier but that seems to have settled now. The need for the bathroom is a little worse than it has been but nothing dramatic has happened yet. I’m still a little anxious about stopping next week but I think the mercaptopurine should be enough to keep me mostly in remission. I’m seeing my GI this Monday so I’ll be able to express any concerns then as I’ll have a better idea of what it’ll be like without the prednisolone.
I’m trying to eat as normally as I can, sticking to mostly gluten-free and only eating what I can instead of trying to force myself to eat in order to finish a meal/meet calorie goals. So far, I’ve only had two days in the last week where I haven’t reached my calorie goal but also a couple where I’ve gone over so it sort of balances out.
While on the subject of food, I got my Rule of Crumb delivery yesterday and I’ve already tried the breaded chicken. To say it was good would be an understatement; I will definitely be ordering from them again. I haven’t tried the fish, bread or muffins yet but I will, hopefully soon, and report back. Thank you to @glutenfreecuppatea for posting about it and leading me to investigate.
Spoonie problems!
That moment when you realise you haven’t taken your meds because you got caught up in preparing the food you need to eat in order to take your meds.
Halloween!
So, I didn’t do anything special for Halloween but I did go out for a meal with my wonderful fiance where we decided to go and see Dr Strange. It is a really good film, so if you haven’t seen it yet, go watch!
In other news, my side is hurting again even though I’ve stayed mostly gluten-free today (I had a tiny bit this evening in the form of a mini egg-custard tart and couple of oreo biscuits). I know I shouldn’t have eaten them but I have a huge weakness for egg-custard. I will do my best to be gluten-free tomorrow; I’ve got some gluten-free Genius bagels so I’ll have one of those for my lunch. I’m also having a bit more fruit at the moment but staying away from anything too acidic.
For those interested in the rats, they are both being adorable and have braved coming out of the cage fully and onto my arms/up my jumper and into the collar for a short time. I’ve learnt one of them likes chocolate but the other doesn’t, and they both like dried banana and coconut shavings as well as pork sausage. I will continue to try and get them used to being on me and rewarding them with treats like fruit as well as the occasional cheerio.
I’m at the gym, speed-walking on the treadmill. I’m not planning on doing much other than some leg weights today. I missed going last week because of my infusion but I’m not too bothered by that. I figure if I go once a week, that’s enough for now.
I was going to go to a local Halloween Fair this afternoon but by the time I get back from the gym, it won’t be worth me going because it closes at four. Still, Halloween tomorrow and me and my wonderful fiance are going Pokemon Go-ing in Portsmouth tomorrow.

