I called the doctor yesterday to see if my results were back but, unfortunately, the test they requested is no longer a routine one so they haven’t even tested it yet! As for my blood test to see if it’s much vitamin D levels that are making my hair fall out, I have to phone the hospital for that because they haven’t sent them to my doctor yet. It’s been over a week.

I’m getting pretty fed up with this flare now; it’s not bad enough for them to do anything but every time I eat, it hurts so I’m trying not to eat much. Even vegetable soup which is usually fine for me is causing issues. I’m not really sure what to do. I can’t tell if I’m getting worse or if I’m just getting used to it.

Just a flare update

It’s been three weeks since I finished my last course of prednisolone and two and a half weeks since I started showing symptoms again. I’ve been flaring fully for about a week and a half now and it doesn’t look like it’s going away on its own. The problem is, I’m starting to become used to it so my control over my diet is slipping which means I’ve been allowing myself to have things I know I really shouldn’t. It hasn’t made me any worse (yet), but I know it’s not going to help me feel any better. I don’t know if it’s worth me call the helpline again because they might just say what they did last time which was that they can’t do anything else until I get worse.
I feel a bit stuck in IBD limbo at the moment, and unsure of what to do. I suppose the best thing for me is to take control of my diet again and be stricter with myself. Make sure I stick to my safe foods, like soup and tea, and try to rest as much as I can, even if I am working.

It’s Crohn’s & Colitis Awareness Week! #IBDVisible

inflamed-and-untamed:

Hey everyone! 

Today I’m talking about IBD awareness because National Crohn’s & Colitis awareness week starts today! National Crohn’s & Colitis awareness week was passed by the US Senate in November 2011 making December 1st through the 7th a week to raise IBD awareness and recognize the efforts of those who care for and support patients living with Inflammatory bowel disease. 

This is the 5th National Crohn’s & Colitis Awareness week. Whoo-dee-whooooo! 

Keep reading

I’ve been a bit self-destructive this week; eating things I probably shouldn’t and trying to ignore my stomach cramps when I know it doesn’t work like that. My symptoms aren’t getting worse but they aren’t going away either. I’m going to try harder to stick to a less destructive diet for the rest of the week (and probably longer) to try and keep myself out of the hospital for the remainder of the year.

So, I’m still flaring and there’s nothing they can do about it. I realise there’s not much they can do besides put me back on steroids, but they’ve made it pretty clear they really don’t want to do that unless they absolutely have to.
I’ve been told to call my IBD nurse again if my symptoms get worse but that’ll likely put me in hospital again. I don’t think I could handle being hospitalised this close to Christmas.

I’m feeling a bit better this morning. I slept better last night and I seem to have gain a bit of my appetite back. The downside is that my symptoms haven’t gone anywhere and feel like they might be slowly getting worse. I’ve had to provid some samples for my doctors because they want to rule out infection before looking into what other meds they can give me.
I’m also back at work today which I’m hoping won’t be too painful; it’s really cold at work which doesn’t help when I’m flaring but my manager has been quite understanding so far.

Flexi is over and done with but they didn’t find anything to warrant them doing anything. I’ve been told to go home and relax, and to call the helpline if things get worse.
I’m doing as I’ve been told and I’m trying to eat as normally as possible but I’m still flaring so that won’t be very easy.
I might take a nap later; the sedative hasn’t quite worn off yet and I’m tired and a little light headed from it still.

Morning of the flexi and I’m still nervous. Nervous and in pain from the “prep”. All I want to do now is sleep but I can’t because I’ve got to leave for the hospital in less than an hour. I also feel a little sick but I don’t think there’s anything left for me to throw up. I can tell this isn’t going to be a good day for me.

Night before the flexi and I’m a little nervous because I don’t want to a repeat of last time and end up in hospital for a week. I’m going to ask for a sedative this time because, although I shouldn’t need it, it was pretty painful last time without it.