Another check-in

The doctor has just been round. He want to do a few more blood tests and stop the colesevelam for now because it’s not really doing much for me. He also spoke about my infusions again so the possibility of them changing it is looking more likely. They might want to do a flexi tomorrow but it’s otherwise steroids for today.

Day three

In a new ward, with new ward-mates (most of whom were moved in during the early hours of this morning, like me) and a team of lovely nurses. I’m not sure if I’ll see a doctor today (doubtful as he only came round to me yesterday) but at least I’ll have time to dose and catch up on some sleep if they just leave me alone today. I was going to try and move around a bit more this time because staying in a bed for days on end makes my legs very stiff when I get out but that might have to wait until tomorrow; I’m badly lacking in spoons today.

You might be a spoonie if….

thecomposerandherchorus:

cripples-r-us-swag:

spoonie-isms:

You’ve had to listen to someone talk about how they don’t take meds because they’re “all natural” and had to both keep a straight face and not slap someone

Even worse, last night I asked a co-worker how her friend that has colitis is doing, and if she is on meds and feeling better…..she kinda looked up and said “Ummm she’s anti-medication, but I’m not sure what she’s doing, she’s definitely feeling better though she wants to go out and drink!”

Jeez….oh to be young and stupid and then nearly die because you believed that “positive thinking” actually works for actual medical issues :/

I’ve been told more than once to “think positively” and I’ll feel better. It’s very hard not to slap people when they say stuff like that.

Just an update

I’ve had an xray on my stomach which hasn’t shown anything bad. They want to see if I react positively to the steroids over the next couple of days but if not, they’re going to do yet another flexi and possibly change my infusion drug. The doctor said it could be due to hypersensitivity within my gut after being inflamed for a while.

Also, my cannula is hurting when they give me my steroids through it so they’re going to change it in a little while.

Thank you to @natsufatsu and @sabinasanfanfic for your kind messages.

Feeling like death warmed up. I’ve been feeling worse and worse over the last four days so I’ve called the helpline in hopes of getting some answers tomorrow. I’ve barely eaten anything today and I spent most of it sleeping.

Thank you @natsufatsu, @mauveina and @aries324 for your advice. I’ve now sorted things and my colleague has backed off entirely and doesn’t comment or even mention my condition. Admittedly, it was my team leader/supervisor who spoke with her for me but it seems to have worked. I’ll keep in mind what you have all said and try not to be afraid for standing up to misinformed/insensitive people. It’s the first time this has happened to me so it was a bit of a weird situation to find myself in. Plus, I hate conflict and don’t deal with it at all well. Thank you all again for your support and encouraging words!